Lena Dunham says she is living with Ehlers-Danlos syndrome after she was photographed using a cane. Here are the symptoms of the inherited condition.
Ehlers-Danlos Syndrome, or EDS, is a group of 13 heritable (i.e., genetic) disorders that affect the body’s connective tissues. These tissues—found mostly in the skin, joints, and blood vessel walls—act like a glue to help provide strength and elasticity to the body’s structures, including the digestive system and essential organs.
You are a teenager, not a medical professional. There is literally no difference in treatment between hEDS and hypermobility - they are both treated symptomatically. There is no special drug or treatment that an EDS diagnosis gets you. Sorry if this is harsh, but for some reason EDS has become a cool diagnosis and I think it's kind of stupid. If I don’t get up when I first wake up I feel so sick to my stomach (my bad stomach issues stem from EDS directly) but my body ,my back ,my neck ,my arms ,my ribs ,my knees ,my hips, my shoulders, pretty much any part of my body that has pressure on it while sleeping, starts to hurt a lot. I (23NB) am physically disabled from an accident 11 years ago, as well as having the h-form of EDS, which is not a new diagnosis.
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Ehlers-Danlos Syndrome, or EDS, is a group of 13 heritable (i.e., genetic) disorders that affect the body’s connective tissues. These tissues—found mostly in the skin, joints, and blood vessel walls—act like a glue to help provide strength and elasticity to the body’s structures, including the digestive system and essential organs. The prognosis of EDS varies greatly depending on the specific type of EDS a patient has. EDS prognosis by disease type. The most common types of EDS (classical, classical-like, and hypermobile) do not greatly affect life expectancy.
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EDS is a Pandora’s box of a diagnosis. But don’t forget the most important thing in that proverbial box: hope. There is hope! Your life is going to look different than you dreamed or
Should I get diagnosed with EDS or HSD if my doctor or I think I might have it? Why get diagnosed with EDS? What's the point?
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Ehlers-Danlos Syndrome is a rare and can cause a defect in the middle ear. It may result in hearing loss. Learn more! May 22, 2019 May is Ehlers-Danlos Awareness month, writes Kelly McQuinlan, who has the rare condition. OPINION: You might think being told I had a rare
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Over 3 years there were 1603 patients hospitalized with a diagnosis of nontraumatic SAH; 1507 (94.0%) of these were admitted through the ED. Of the 176 EDs
expertise includes evaluation of individuals with developmental disorders/ autism and those with connective tissue disorders such as Ehlers-Danlos syndrome. Dec 10, 2018 Nicola Smith living with Ehlers Danlos syndrome.
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Periodontal Ehlers-Danlos syndrome (pEDS), also known as EDS type 8, is the rarest form of EDS. It is characterized by periodontitis (serious gum inflammation), which eventually leads to the loss of teeth. Periodontitis in pEDS patients has an early onset, appearing in puberty. Background.
Vidare förekommer luxationer (vrickningar) av leder, skolios, komplikationer vid graviditeter, svårigheter att sy kirurgiskt samt tand-, tandkötts- och käkledsproblem. Ehlers-Danlos syndrom (EDS) är en grupp om idag 13 ärftliga diagnoser, som beror på mutationer i olika gener där olika nedärvningsmönster förekommer som leder till specifika avvikelser i kroppens bindväv (1). EDS av hypermobilitetstyp (hEDS) är den i särklass vanligaste formen och har ett autosomalt dominant nedärvningsmönster. Vascular EDS. The diagnosis of vascular EDS (MIM 130050) carries with it the life-threatening risks of blood vessel and organ rupture, sometimes in childhood.
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EDS can be difficult to explain and understand so give them and yourself time to digest this information. While it is tempting to spend hours looking up EDS on the computer and do lots of research, try to bear one thing in mind-you are the same person you were prior to diagnosis. You are not broken. This is just the way your genes express
imgur.com / Via reddit.com. Apr 4, 2018 Visit https://www.reddit.com/r/SNPedia Ehlers–Danlos syndrome (EDS) is an inherited connective tissue disorder with different EDS is caused by a defect in the structure, production, or processing of collagen or pro Jun 9, 2017 Hey Reddit – Great to be back (It's Dr. Mark Pimentel). any link that you've found between IBS/gut flora disturbances and Ehlers-Danlos?